Organizations
Parkinson Research Foundation
The Parkinson Research Foundation is a nonprofit health organization
providing Parkinson's research, information and advocacy. The mission
of the organization is to cure Parkinson's and to improve the lives of
all people affected by the disease.
American Parkinson's Disease Association
This web site provides information about Parkinson's Disease, the Udall
Act, current events, getting involved, fellowships and grants, video
rental, chapters, and information and referral center locations.
Family Caregiver Alliance
A caregiver support organization for caregivers of adults with
Alzheimer's disease, stroke, traumatic brain injury, Parkinson's
disease, ALS and related brain disorders.
Family Caregiver Support Network (FCSN)
A Milwaukee, Wisconsin
based free resource center that helps family caregivers of older
adults. A family caregiver is a spouse, child, other relative, friend
or neighbor who is concerned about, helps or cares for an older adult.
The HollyRod Foundation
Founded in 1997 by NFL quarterback Rodney Peete and actress Holly
Robinson Peete in honor of Holly's father, Matthew T. Robinson, Jr, the
organization is dedicated to providing medical, physical and emotional
support to those suffering with Parkinson's disease. The HollyRod
Foundation Web site provides information about Parkinson's Disease,
events, contact information and links to other resources.
Muhammad Ali Parkinson Center
The Muhammad Ali Parkinson Center (MAPC) is a National Parkinson
Foundation Center of Excellence, and a wonderful resource for people
with Parkinson's and their families. Their staff is committed to
providing excellence in diagnosis, treatment, research and education
for people with Parkinson's disease (PD) and other movement disorders.
Michigan Parkinson Foundation
Localized education and support to people with Parkinson's and related
disorders, their loved ones and care partners, and the physicians and
other allied health professionals who diagnose and treat those affected
by the illness. Monthly Care Partner Support Group.
National Family Caregivers Association
NFCA was the first national, charitable organization dedicated to making life better for all of America's
family caregivers. Provides service in the areas of information and
education; support and validation; public awareness and advocacy.
National Institute of Neurological Disorders and Stroke (NINDS)
This site contains a pamphlet written by the National Institute of
Neurological Disorders and Stroke (NINDS). NINDS, one of the US
Government's 17 National Institutes of Health in Bethesda, Maryland, is part of the Public Health Service within the US Department of Health and Human Services.
National Organization For Empowering Caregivers
The NOFEC is dedicated to providing assistance, education, support,
respite and referrals for informal family caregivers, as well to
promote public awareness about the realities of caregiving. They are
committed to encouraging mutual collaboration with other organizations
to serve the growing needs of family/informal caregivers.
National Parkinson Foundation
This is the web site for the NPF and has a complete menu of information
on Parkinson's disease including support groups, patient services,
disease information, clinical studies, a library, news, events, patient
services, other links, and more.
Northwest Parkinson's Foundation
One of the most active Parkinson's organizations in the U.S. with an
eye on improving the quality of life for those touched by Parkinson's
Disease – patients, families and caregivers.
Parkinson's Disease Foundation
This is the web site for the Parkinson's Disease Foundation and
contains information about Parkinson's disease, the foundation and an
updated news area.
Parkinson's Disease Society
The stated aims of the Parkinson's Disease Society are to help people
with Parkinson's disease and their families with the problems
associated with the illness, to collect and disseminate information on
Parkinson's disease and to encourage and provide funds for research
into Parkinson's disease.
The Parkinson Alliance
The Parkinson Alliance was formed in January of 1998 with the aid of
the National Parkinson's Foundation. Primarily designed for the
Parkinson's disease patient with information on support groups, news,
links to other PWP (people with Parkinson's) WebLink sites, jokes,
political developments, and news.
Informational Sites
Aging Solutions
Advice, comprehensive checklists, and links to key resources ...
designed to make it easier for family caregivers to quickly find the
information they need ... and avoid missing things that are important
in the care of their loved one.
Caregiver.com
A leading provider of information, support and guidance for family and
professional caregivers. Founded in 1995, we produce Today's Caregiver
magazine, the first national magazine dedicated to caregivers, the
"Sharing Wisdom Caregivers Conferences", and our web site,
caregiver.com which includes topic specific newsletters, online
discussion lists, back issue articles of Today's Caregiver
magazine, chat rooms and an online store. Caregiver Media Group and all
of it's products are developed for caregivers, about caregivers and by
caregivers.
Caregiver Survival Resources
Jim and Merlene Sherman draw on their 35 years of caregiver experience
to write about and provide caregiving presentations and workshops.
Through their site they will offer answers to caregiving questions,
along with a list of resources and caregiving books.
CARE - for CareGivers of People with Parkinson's
A novel approach to providing information to caregivers. Information on
this site is drawn from the messages that are posted to the CARE
(Caregivers Are Really Essential) forums. This is information from
people who are who are Caregivers, either directly or indirectly, of
people who are living with parkinson's.
Doctor's Guide to Parkinson's Disease Information & Resources
Medical information for patients, or friends and parents of patients,
diagnosed with Parkinson's disease. The site contains sections on
Medical News and Alerts, Parkinson's Disease Information, Discussion
Groups and Newsgroups links to other Related Sites, and a sign up to
receive e-mail allowing the individual to stay abreast of Parkinson's
disease developments on the Internet.
Empowering Caregivers
A spiritual approach to Aging, Caregiving, End-Of-Life Issues. The site
features: A free newsletter, frequently updated Caregiving articles,
journal exercises created to help caregivers express writing about the
issues that challenge tem most, a monthly spotlight on a caregiver of
the Month, and a Healing Circle which promotes the power of prayer in
large numbers.
Family CareGiving 101
Created by the National Family Caregivers Association and the National
Alliance for Caregiving, this web site provides valuable tips to help
caregivers self-identify (a critical first step) and gain resources on
a variety of topics such as counseling, training, and how to navigate
the healthcare maze.
Health Finder - Government Access to Libraries
Healthfinder is a free gateway to reliable consumer health and human
services information developed by the U.S. Department of Health and
Human Services. Healthfinder can lead you to selected online
publications, clearinghouses, databases, web sites, and support and
self-help groups, as well as the government agencies and not-for-profit
organizations that produce reliable information for the public.
InteliHealth Caregiver Zone
A great caregiver's page — providing tips, articles, coping solutions
and more. InteliHealth is a joint venture of Aetna U.S. Healthcare® and
Johns Hopkins University and Health System. Established in 1996, InteliHealth has become one of the leading health information companies in the world.
National Library of Medicine
The National Library of Medicine's MEDLINEplus information pages are
designed to direct you to resources containing information that will
help you research your health questions. They are designed for
educational use only and are not intended to replace advice from a
health professional.
Medicine Net
A network of U.S.
board-certified physician writers and scientists providing in depth
medical information for consumers through the interactive web site.
Parkinsons disease Control
Created by Healthology, this site features content created by PD
thought leaders and medical experts to provide a full range of
information about Parkinson's disease, current treatment options, the
latest research, and more. Also, patients and their caregivers offer
personal testimonials about how they are able to cope with Parkinson's
disease. Parkinsons Control.com features streaming video programs with
full text transcripts, which creates a fully interactive experience for
anyone seeking information on Parkinson's disease.
Parkinson's Training for Caregivers
The Parkinson's Training for Caregivers project is a free online course
developed to train caregivers in caring for those with Parkinson's
Disease in long-term care settings.
Parkinson's Unity Walk
The Parkinson's Unity Walk is an event held in New York City in the fall of each year to increase public awareness about PD and raise funds for research.
The Parkinson's Web
A national advisory board oversees this site that includes sections
titled: A Parkinson's Primer, Diagnosing Parkinson's, Medical
Treatment, Mind and Body, Coping, Support Resources, Recent Research,
New Publications, Bibliography, Glossary, Surgical Procedures,
Massachusetts General Hospital Neurology Department, Questions, and
links to other sites through the Parkinson's Disease Web. There is also
a Neurology WebForum sponsored by the Massachusetts General Hospital
Neurology Department.
Parkinson's disease Care on RemedyFind
RemedyFind is a free, unbiased site (not sponsored by drug companies
etc.) where individuals can rate the effectiveness of the Parkinson s
Disease treatments they have tried.
U.S. News & World Report Online Guide to Parkinson's disease
US News & World Report and Stanford University Hospital &
Clinics have launched a comprehensive guide to Parkinson's disease.
Topics covered include eating, exercise, sexual difficulty, sleep
disturbances, and coping with depression.
Worldwide Education and Awareness for Movement Disorders
One of the Internet's most comprehensive resources for movement
disorder information and the hub of movement disorder activities on the
Web. The site's mission is to increase awareness of neurologic movement
disorders and make early diagnosis, up-to-date treatment, and patient
support a reality for all people living with movement disorders.
Senior Information
American Association of Retired Persons
A nonprofit, nonpartisan association dedicated to shaping and enriching
the experience of aging for its members and for all Americans.
www.benefitscheckup.org
BenefitsCheckUp helps find programs for people ages 55 and over that
may pay for some of their costs of prescription drugs, health care,
utilities, and other essential items or services.
Last Acts
Last Acts is an unprecedented national effort to raise awareness of the
need to improve care of the dying and to share issues and ideas at the
national, state and local levels.
Guide to Retirement Living
The Guide to Retirement Living Online is the Internet version of the
mid-atlantic regional publications, The Guide to Retirement Living.
Each edition features a complete listing of all senior residential
communities, long-term care facilities, and home care services. The
Guide also features objective articles by national experts in the field
of aging on issues that affect seniors, caregivers, and professionals.
MyZiva.net
MyZiva.net - The Complete Nursing Home Guide, is a free, objective and
easy-to-use nursing home resource for prospective residents, caregivers
and healthcare professionals. Help in finding and comparing nursing
homes, nationally.
Federal Government Agencies
Health Care Financing Administration
In addition to providing health insurance, HCFA also performs a number
of quality-focused activities, including regulation of laboratory
testing (CLIA), surveys and certification of health care facilities
(including nursing homes, home health agencies, and intermediate care
facilities for the mentally retarded), development of coverage
policies, and quality-of-care improvement.
Administration on Aging
In response to the growing number of older people and their diverse
needs, the Older Americans Act of 1965 as Amended calls for a range of
programs that offer services and opportunities for older Americans,
especially those at risk of losing their independence. The Act
established the Administration on Aging (AoA), an agency of the U.S.
Department of Health and Human Services, which is headed by the
Assistant Secretary for Aging in the Department.
Social Security Online
Provides information about Benefit Information Publications
(retirement, survivors, disability and supplemental security income
publications) and how to apply for social security retirement benefits,
etc.
National Institute of Neurological Disorders and Stroke
The NINDS, an agency of the U.S. Federal Government and a component of
the National Institutes of Health and the U.S. Public Health Service,
is a lead agency for the Congressionally designated Decade of the
Brain, and the leading supporter of biomedical research on disorders of
the brain and nervous system.
New Medicare Prescription Coverage Information
From the Official U.S. Government Site for People with Medicare,
nformation about Medicare prescription drug coverage, what it is, who
can get it, when you can get it, how can you get it and why you should
get it.
Miscellaneous
American Academy of Neurology
The American Academy of Neurology is a medical specialty society
established to advance the art and science of neurology, and thereby
promote the best possible care for patients with neurological disorders.
Brainnet.org - Central Nervous System & Brain Disorders Network
This WEB site is devoted to helping people and their caregivers better
understand the clinical advances both being studied in the laboratory
and those that are available now.
Center for Neurologic Study
The Center for Neurologic Study Home Page is designed to present our
current activities on the WWW. CNS is a non profit organization
dedicated to research and treatment of neurological diseases. The
Center was founded in 1979 with the intent of helping patients and
families who have been affected by presently incurable neurologic
disease. To accomplish this the Center focused on experimental
treatment and patient / family support and education.
Society for Neuroscience
The Society for Neuroscience is the world's largest organization of
scientists and physicians dedicated to understanding the brain, spinal
cord and peripheral nervous system. Neuroscientists investigate the
molecular and cellular levels of the nervous system; the systems within
the brain, such as vision and hearing; and behavior produced by the
brain. This research provides the basis for understanding the medical
fields concerned with treating nervous system disorders.